From the National Human Genome Research Institute:
Each person’s DNA sequence includes health and other information about them and their families. Technological advances mean that it is now cheaper and easier than ever to sequence and interpret genomic information. Whether genomic information is being used for research, clinical or other uses, it is important to consider how best to ensure that individuals’ privacy is respected. There are laws and policies that serve to protect the privacy of individuals’ genomic information, and there is ongoing debate as to whether further measures are needed.
Genetic privacy involves the right or mandate of personal privacy concerning the storing, repurposing, provision to third parties, and displaying of information pertaining to one’s genetic information. The advent of new technologies streamline high-throughput, low-cost sequencing of human genomes that raises important ethical concerns about the future of healthcare.
Think how many times you’ve had blood drawn. You have no idea if your DNA is in some database.
I joined this study sponsored by the NIH. I’ll be giving away my DNA. More to gain than lose. I hope it is used for good. Gary